PiA
exists to support people living withPrimary Immunodeficiency. We liaise with clinicians and immunologists, fund relevant
research and campaign for the rights of our members in the UK.
Swine
Flu - The latest Questions and Answers from PiA's Medical Advisory Panel
For
official, updated PiA advice for its PID members, click....HERE
London and South Eastern Hospitals' Patients' Day
The PiA London and South Eastern Hospitals’ Patients’ Day was held on the 5th September. The day was a huge success; it gave PiA members and their families a chance to attend expert medical presentations and specialised workshops, as well as a great opportunity to meet trustees, PiA staff and other PiA members with primary immunodeficiencies. If you would like a copy of the speaker presentations, you may download a copy...HERE.
If you have any problems with downloading the presentations, please contact the PiA office on 020 7976 7640 or email us at info@pia.org.uk
Christmas
The results of the PiA Annual Grand Draw are in! We would like to thank David Hartley, Chief Executive of XLP Research Trust, who kindly drew the prize tickets. Congratulations to all the winners below:
1st Prize of £500.00:
Ms Laura Gregory (ticket number 51895)
2nd Prize of £250.00:
Mr Steve Andrews (ticket number 49507)
3rd Prize of £100.00:
Dr Linda Buchan (ticket number 6413)
Prizes of £50.00:
A Sharp (ticket number 44790), Mrs Gillian Greener (ticket number 53619), Mr Christopher Jackson (ticket number 38863), Mrs Shirley Burton (ticket number 17384) and Mrs J Urquhart (ticket number 5937)
Fundraising
Look out for your pre-Christmas mailing in the post and join in our ‘Winter Warmer’ appeal.
I know many of you have given generously throughout the year and have kindly bought PiA Christmas cards and draw tickets (still time to put in your order if you haven’t done so already) but we are asking you to finish 2009 with a fundraising flourish and give whatever you can to help fund a fuller than ever PiA programme of support and member activities in 2010. It doesn’t matter how much or little you give – all donations are very welcome – but if you are able to give a regular amount to PiA why not consider a standing order or direct debit … and remember we can claim Gift Aid on all your donations.
We will be featuring a selection of your 2009 Fundraising efforts early in the New Year, so don’t forget to send us some great photography and a write up of your triumphs on behalf of PiA.
Donating
to PiA
To make donations directly
to PiA using a credit or debit card, please click the donations button under the contents menu on the left hand
edge of this page.
To sponsor people for
events and challenges, or to donate to us via the just giving website, hit the big green button
below.
Travel
Insurance
This
is an on-line facility for UK residents only.
It
is NOT OWNED OR OPERATED by PiA, and we do NOT
profit from its use.
We
provide the link purely as a service to PiA members.
Please
read everything very carefully before buying a policy online.
Remember,
if you call the office we can provide a list of other brokers (who
do not sell online).
Our Welfare
and Benefits Advice Service is now temporarily suspended. Members
seeking advice about DLA claims should call the office where alternative
advisory services can be recommended. In the meantime don't forget
our DLA Guide (for all members except those with HAE) which you
can download by clicking...HERE
For members with HAE,
our specific DLA Guide for HAE is available when you click...HERE
Some
Hygiene Tips from our Discussions Forum....HERE
Jeans
for Genes News
Jeans for Genes day 2009 took place on Friday 2nd October, for the latest news from the day’s events please click HERE.
View
a "YouTube"
film which identifies the direction and achievements of Jeans
for Genes. The film highlights particular issues, such
as: Mytobula Myobathy, Muscular Dystophy and Cockayne Syndrome.
click..... http://www.youtube.com/user/JeansforGenesUK to link up to our 4 minute film where Sophie L, who is 9 years
old, wonderfully describes her brother Tom’s rare genetic condition
Mytobula Myopathy. The film basically informs the viewer about the
J4G charity and what we do to help children suffering from genetic
disorders.
There
are additional films that are featured on our YouTube page which shed light on other rare genetic conditions which are
explained by sufferers and family members.
The
Centre for Immunodeficiency is dedicated to development
of improved therapies for patients with inherited disorders of the
immune system through high quality science and clinical care
