PiA exists to support people living with Primary Immunodeficiency. We liaise with clinicians and immunologists, fund relevant research and campaign for the rights of our members in the UK.

Save the date!

PiA Annual Meeting and Humberside Regional PID/HAE Patients' Event

This is an opportunity for all PID and HAE patients, both PiA members and non-members, to get together and discuss the issues that are important to you.

This is the biggest patient event in the PiA calendar and we look forward to meeting you!

If you are interested in joining us, please contact Kate Ward, PiA's Membership Co-ordinator and Admin Assistant on 020 7976 7640 or email

kate@pia.org.uk.

Saturday 18 September 2010

Hilton Sheffield Hotel, Victoria Quays,

Furnival Road, Sheffield, S4 7YA

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Fundraising

The Virgin London Marathon is now one of the largest charity sporting events in the world. A huge congratulations to Mathew Tyrrell, Emma Benson, Colin Smith, John McMullen, Barry Lewis and Eddie Cook, who together have raised over £11,000.00 with donations still rolling in!

If you are interested in joining 'Team PiA' for the 2011 London Marathon, please click here to download a registration form, or contact Helen on 020 7976 7640 or helen@pia.org.uk for more information.

In 2009 we had a team of 25 runners take part in the Adidas Women’s 5k challenge. We all had a lot of fun and following on from this success we would like to double our numbers to 50 for the 2010 on Sunday 5th September! Please join us and for all you men out there, please ask your wives, daughters, sisters, friends and colleagues to support PiA and help raise funds and awareness for all those living with primary immunodeficiencies. For more information on how to enter, please click here.

If you would like to organise your own fundraising event but you are stuck for ideas, please click here for the PiA Alphabet of Fundraising guide. Alternatively contact Helen on 020 7976 7640 or helen@pia.org.uk for a fundraising pack.

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Events

Jeans for Genes day is on Friday 1st October, please click the button above for details on how to get involved.

The New Horizons, new Hope 1st Wiskott-Aldrich Family Conference is from 30th July to 1st August 2010 at the Hilton Chicago Indian Lakes Resort, Illinois, USA. This conference will provide an opportunity for families living with Wiskott-Aldrich Syndrome (WAS) to get together for a weekend of learning, sharing and fun! For more information and to download the registration form please click here. There will also be lots of fun activities for the kids all weekend, and if your kids have that artistic flare, maybe they would like to enter the competition to design the conference t-shirt, with a prize of $100.00! For more information on how to enter please click here

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New members

The PiA is the only registered charity dedicated to supporting and helping children and adults with Primary Immunodeficiencies in the UK. We provide information for the newly diagnosed and the not so newly diagnosed in the form of newsletters, leaflets and an informative website. Through patient days and other PiA events, you will have the opportunity to meet up with others who have similar rare conditions to your own, and share personal experiences.   

We also organise holiday breaks for children and young people with primary immunodeficiencies, giving them the chance to get away and have fun. We can help you with information packs for children with primary immunodeficiencies who are starting school or college, and we can advise you on travel insurance and holiday planning.   

We do not charge for membership and it’s easy to join; simply download the membership form here, and send it to joinup@pia.org.uk or fax it to 020 7976 7641. You can also post it to:   

New Membership

PiA

Alliance House

12 Caxton Street

London

SW1H 0QS

If you would like any further information, please contact Kate on 020 7976 7640 or email joinup@pia.org.uk.

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Donations

As we receive no government funding, member donations and fundraising activities help to fund the running costs and services offered. To make donations to PiA using a credit or debit card, please click the button below:

If you would like to donate on a regular basis, or you would like to make a one off donation by cheque, postal order or CAF; please download our bankers order form here. All donations will be gratefully received. Thank you.

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Swine Flu - The latest Questions and Answers from PiA's Medical Advisory Panel

For official, updated PiA advice for its PID members, click....HERE

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Travel Insurance

This is an on-line facility for UK residents only.

It is NOT OWNED OR OPERATED by PiA, and we do NOT profit from its use.

We provide the link purely as a service to PiA members.

Please read everything very carefully before buying a policy online.
Remember, if you call the office we can provide a list of other brokers (who do not sell online).

For the online option click.... HERE

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DLA Advice

Our Welfare and Benefits Advice Service is now temporarily suspended. Members seeking advice about DLA claims should call the office where alternative advisory services can be recommended. In the meantime don't forget our DLA Guide (for all members except those with HAE) which you can download by clicking...HERE

For members with HAE, our specific DLA Guide for HAE is available when you click...HERE

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Some Hygiene Tips from our Discussions Forum....HERE

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Important New Link

The Centre for Immunodeficiency is dedicated to development of improved therapies for patients with inherited disorders of the immune system through high quality science and clinical care

To visit the website click.....HERE